“Just go – when someone suggests it, just go! It took me three months of saying no…and that was three months of friendships I could have had. It’s worth it!”

“Don’t hesitate – get involved as soon as you can. Involvement will provide the support and understanding from others who have started the journey before you and can help you understand what’s ahead and provide an understanding ear when you express your fears, successes and disappointments. For us, those first MRIs were heart stopping scary and we had no-one to share that with or to help calm our fears.”

“You will be glad you came.”